tag:blogger.com,1999:blog-6463988665912494503.post5431117900566079411..comments2024-03-09T10:40:08.270+00:00Comments on I Have Eczema: ImmunosuppressantsAnonymoushttp://www.blogger.com/profile/06028427818355761409noreply@blogger.comBlogger26125tag:blogger.com,1999:blog-6463988665912494503.post-50955115018434278952020-10-04T08:28:06.068+01:002020-10-04T08:28:06.068+01:00Hello everyone I'm here to testify and enlight...Hello everyone I'm here to testify and enlighten you on how you can be cure from the disease/virus known as DIABETES as the FDA described that it cannot be cured or there is no cure for it, not knowing that herbal treatment is highly recommended for the treatment and cure for Diabetes its easy and it has no side effect, Doctor James herbal center it's A1 and a powerful strong pure natural remedy that can be used in the prevention and elimination of diabetes totally. 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DRJAMESHERBALMIX@GMAIL.COMStephenie Brownhttps://www.blogger.com/profile/01272816128209652409noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-44071104863131973972019-07-20T10:18:52.963+01:002019-07-20T10:18:52.963+01:00I have being on blog Sites for a while now and tod...I have being on blog Sites for a while now and today I felt like I should share my story because I was a victim too. I had HIV for 6 years and i never thought I would ever get a cure I had and this made it impossible for me to get married to the man I was supposed to get married to even after 2 years of relationship he broke up with me when he finds out I was HIV positive. So I got to know about Dr. Itua on Blog Site who treated someone and the person shared a story of how she got a cured and let her contact details, I contacted Dr. Itua and he actually confirmed it and I decided to give a try too and use his herbal medicine that was how my burden ended completely. 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He's a good man. <br />Or Text me on +1-502-2334-479 for more expliant. Dana Floreshttps://www.blogger.com/profile/00221583725012759598noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-17656530143385544972018-05-07T03:20:50.990+01:002018-05-07T03:20:50.990+01:00Hello! i was diagnosed with eczema a few years ago...Hello! i was diagnosed with eczema a few years ago. The treatment that has helped me a lot was foderma, I recommend it!Emilly Padddingtonhttps://www.blogger.com/profile/01677114749917373076noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-22402517572470252122017-10-31T12:57:53.629+00:002017-10-31T12:57:53.629+00:00Hi, my eczema has also been considered severe sinc...Hi, my eczema has also been considered severe since 2012 (had it since 2004) and have tried/still trying all the immunosuppressants you have listed.<br /><br />I was on ciclosproin for around 1.5 years in 2012 and it worked very well only for 3 months. And as the trend goes, my skin progressively worsened beyond my original state.<br /><br />2014 i was on azathioprine about 6 months and that didn't work at all.<br /><br />2nd half of 2014 i was on methotrexate. This was the most effective treatment for me as it sustained me for 3 years. I just turned 19 so within those 3 years i was finally able to do sports in school, endure the blistering heat of my country (near the equator) and most of all sweat without itching profusely. The only side-effect i experienced was the occasional dizziness and rarer outbreaks eczema herpeticum (only 2 times if i remember correctly). It stopped working around June this year because i started to tail down the dosage - i was reaching the threshold before they need to test the toxicity levels in my liver and my doctor was trying to prolong my use of MTX as long as possible.<br /><br />After another 2 outbreaks of the HSV virus, Ive now been on mycophenolate for a month with no observable improvement as of yet<br /><br />I've also tried phototherapy for 3 months but stopped it because i couldn't build up the dose - missed several treatments because i couldn't leave the house. My brother has more severe eczema than i do but has found phototherapy more beneficial - itching less, nodules have reduced (But he still flares up slightly less often than i do). Methotraxate and ciclosporin didn't help too.<br /><br />My mother and i have also tried Traditional Chinese Medicine where we drink boiled herbs for 2-3 years and avoid certain foods even if you aren't allergic to them. I tried for over a year and found that it didn't help me, but my mother was able to do it for 3 years and it actually worked for her. She only flares maybe 3-5 times a year (Not too horribly either) and is fully functional the rest of the time. Rarely does she apply steroid creams ~ only to help maintain it when she flares, even then she doesn't use the high strength steroids.<br /><br />Just sharing since reading this page and other stories was helpful ~ coming fromva family of 5, all coping with eczemaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-62131790908714288812017-10-06T15:40:27.480+01:002017-10-06T15:40:27.480+01:00I have severe "hand eczema" I have been ...I have severe "hand eczema" I have been in pain for two years straight, I received foderma serum yesterday and 1. It felt good going on, not the "I gotta get through the sting before I get healing" coping feeling but it felt GOOD GREAT even especially as recommended after storing in refrigerator. 2. haven't even had to use my steroids (using for 2 yrs up to 6 x day!!) once since I received this serum and my hands feel like they are healing HEALING !!Delilahnoreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-79326776552742950322017-08-28T13:10:51.199+01:002017-08-28T13:10:51.199+01:00thanks for sharing this informative post.
mycophe...thanks for sharing this informative post.<br /><a href="%E2%80%9Dwww.mediartlifesciences.com/mycophenolate-capsules/%E2%80%9D" rel="nofollow"> mycophenolate capsules</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-84614431570608933202017-05-24T09:50:15.958+01:002017-05-24T09:50:15.958+01:00Hi, i have previously been on ciclosporin and it w...Hi, i have previously been on ciclosporin and it worked wonders for my eczema, i was only on it for a short period of time to prevent a flare up before i got married (around 4 months). My skin is so thin from prolonged topical steroid use and so i have asked my dermatologist about immunosupressant treatment again. She has not allowed me to go back on ciclosporin but suggested methotrexate but im concerned by all the side effects, particularly that your not allowed to drink at all and i do enjoy a glass of wine or two now and again. Has anyone experienced any adverse reactions whilst taking methotrexate if they have had a drink? I have been looking in to taking mycophenolate as it doesn't seem to be as toxic for the liver, what are peoples experiences of taking this for their eczema treatment? I have tried azothioprine in the past but i couldn't tolerate this as it made me very sick and i had incredible joint pain also. Any comments/suggestions would be really welcomed. Thanks Bec Bechttps://www.blogger.com/profile/09251858518358955120noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-45442608490320643072017-03-21T06:00:17.240+00:002017-03-21T06:00:17.240+00:00Hi I'm a ex azathioprine user (ex as hair loss...Hi I'm a ex azathioprine user (ex as hair loss n inside mouth skin loss was unbearable ) and due back to see specialist this Friday does anyone know what they might try neXT with me....since stopping the burn and itch has been unbearable at timEssex and seem my excema is going through a really bad time my skin is thin due to over use of the steroid and this is why the tablets were used to give me a break from them xx thanks for reading folks leighhttps://www.blogger.com/profile/06847935081004332356noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-72071020582651694772017-03-02T01:48:22.987+00:002017-03-02T01:48:22.987+00:00Our three year old grandson has chronic eczema . W...Our three year old grandson has chronic eczema . We purchased the Foderma Serum to have our daughter try on him. She has now been applying foderma serum daily for about three weeks-just opened her second bottle, couple of nights ago she reported that the serum is working really well, and to date is the only such product her three year old has tolerated and has enabled such a positive result. Visible symptoms and itching are dramatically reduced.Amber Smithnoreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-44676841691048732982016-11-28T19:01:43.024+00:002016-11-28T19:01:43.024+00:00I'm sorry for your breakup and what you're...I'm sorry for your breakup and what you're going through. I can relate because I was in a similar situation, although it wasn't as painful as your story. I found out that my eczema is caused by my food allergies, have you considered being tested? I just started this treatment called LDA immunotherapy, it's too soon to expect any results right now. Apparently, it's a very powerful treatment and only a handful of doctors in the US practice this treatment. I really hope this treatment works, i've tried countless immunosupressants and I'm just MISERABLE. I just want to end this all.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-51294396233363519062016-09-13T13:21:37.025+01:002016-09-13T13:21:37.025+01:00It's glad to see your blog for medicine and i ...<br />It's glad to see your blog for medicine and i always trying to find that kind of blog as you have and i love research and you have valuable information...thank you<br /><br /><a href="http://www.mediartlifesciences.com/mycophenolate-tablet/" rel="nofollow">mycophenolate tablet</a><br />Anonymoushttps://www.blogger.com/profile/00091532063314395279noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-56409228229059807862016-08-23T14:34:28.993+01:002016-08-23T14:34:28.993+01:00Hi, I'm 58 and had eczema on and off all of my...Hi, I'm 58 and had eczema on and off all of my life.I've been on Cyclosporine for 6 months (two a day) but the dermatologists have now taken me off them, one week later the Eczema is flaring up again. I have an appointment with them next month when I'm sure they will want me to try Methotrexate, but all of the reports on side-effects terrify me.Iannoreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-23227855292546215682015-11-17T16:31:46.132+00:002015-11-17T16:31:46.132+00:00This is my second week on Methotrexate, and I feel...This is my second week on Methotrexate, and I feel as though someone has surgically removed my brain and left cotton wool in it's place, and taken any energy level I had with it!<br />On the plus side my skin, which has been burning and itching for the last almost three years seems to be calming down, though I can get itchy /burny at night across my shoulders, my neck and and scalp..<br />Has anyone got a positive message or experience of methotrexate they'd like to share?<br /><br />Thanks.#Whoisyeronehttps://www.blogger.com/profile/01522519083609648974noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-83791989446912639592015-09-20T22:56:37.608+01:002015-09-20T22:56:37.608+01:00My 8 year old has an appt on this week to discuss ...My 8 year old has an appt on this week to discuss starting Methotrexate. Ciclo. was mentioned at a different hospital over a year ago. Hard to make the choice for my son. Blood tests could be the deciding factor. No-go area. Last time, 3 hours, 3-4 nurses and myself to pin him down. I don't know if I could do that to him. Finished oral steroids on fri for asthma and antibiotic ends tomorrow -eczema looking great!F griffhttps://www.blogger.com/profile/11420483041738273961noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-44460301386859920312015-09-20T22:56:03.091+01:002015-09-20T22:56:03.091+01:00My 8 year old has an appt on this week to discuss ...My 8 year old has an appt on this week to discuss starting Methotrexate. Ciclo. was mentioned at a different hospital over a year ago. Hard to make the choice for my son. Blood tests could be the deciding factor. No-go area. Last time, 3 hours, 3-4 nurses and myself to pin him down. I don't know if I could do that to him. Finished oral steroids on fri for asthma and antibiotic ends tomorrow -eczema looking great!F griffhttps://www.blogger.com/profile/11420483041738273961noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-55309607968207744562015-05-28T10:24:12.497+01:002015-05-28T10:24:12.497+01:00continue writing true intrestingcontinue writing true intrestingAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-58550305958414716962015-03-25T18:42:26.557+00:002015-03-25T18:42:26.557+00:00..... Sorry, my previous post was rather long! On........ Sorry, my previous post was rather long! Once I got going I couldn't stop typing! What course of treatment did you decide to go on in the end (as I can see this post is a couple of years old), and are there any improvements in your condition? <br /><br />KevinAnonymoushttps://www.blogger.com/profile/07339434485819548279noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-17297531784741633702015-03-25T18:40:03.484+00:002015-03-25T18:40:03.484+00:00Hi Jenny,
I've just come across this post on...Hi Jenny, <br /><br />I've just come across this post on your blog as I was surfing the Internet to gain information on immunosuppressive treatments for eczema, & it was a very interesting read. <br /><br />I've had bad excema since about 2004 on my hands, and in 2006 it spread to the rest of my body, at the age of 28 in a big flair up. UV light treatment worked wonders for me back in 2007, and it was under control through use of emollients and steroid creams for a good few years after that, but the condition got worse again in 2012. Patches on my body and flairs on my face and neck. I met my partner (recently ex) whilst my skin was in an "OK" phase. Then a few months later it started hitting my body harder again. Finally got re-referred to a dermatologist in 2013. UV light treatment didn't work for me 2nd time around just over a year ago. Skin wasn't great for the next few months, and my dermatologist was already suggesting immunosuppressive drugs for me to consider, but then had a massive breakout all over my body in May. It was horrendous, my skin was so sore all over I could hardly move, sleep or function for over 3 weeks. It calmed down after a few weeks, was on several courses of steroids but I don't think they did anything to help - the skin finally calmed down when it wanted to and not before. <br /><br />But, even though it calmed compared to how it was during that explosive flair, my skin has been quite bad since then, and my dermatologist put me on ciclosporin back in late September. <br /><br />Originally I was on 150mg twice a day for a couple of months, at this level it seemed to transform my skin for a little while. The dermatologist was keen to get me off this drug as soon as possible though, because it's seen as a short term solution. I agree with your comment regarding the smell of the tablets, they do stink! I was reduced to 100mg twice a day and currently 50mg twice a day and my dermatologist is keen to take me off it and put me onto either Azathioprine or Methotrexate. Ciclosporin seemed to work for the first few months, but the last couple of months my skin has got much worse again and at present it is bad; dry flakey skin over most of my body and red patches in many areas, dry itchy, sore, including areas of face and scalp. So at present, this low dose of ciclosporin is doing nothing. <br /><br />I've also recently gone through a painful relationship breakup (it happened on NYE), which I partly blame on my excema as I struggled to cope with my condition and I was worried about the side effects of the drugs and my partner was frustrated that I wasn't willing to help myself; it caused strain between us. I feel so down about it and worry that I don't have the support of my partner any more and wouldn't want to inflict this condition on anyone else in the future.<br /><br />We had gotten engaged last May, we have a house together, and 7 months after getting engaged she calls it off. Unfortunately through some of that time I just wasn't myself because my eczema was so bad, it was so uncomfortable to live with that I was down and miserable for some of that time and wasn't able to focus on our wedding plans. She was ultimately frustrated at how I handled my skin condition. I was too worried about the side effects, and it took me longer to start the ciclosporin than was ideal, but I did go on it eventually, just seemingly too late. <br /><br />I am 37 years old and now I have to try and decide what the next course of treatment is going to be (as well as trying to deal with this breakup which is consuming much of my energy). <br /><br />Anonymoushttps://www.blogger.com/profile/07339434485819548279noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-57987902251551119692014-03-07T21:40:10.236+00:002014-03-07T21:40:10.236+00:00Hi Elaine! Yes I was using steroids for about 3 ye...Hi Elaine! Yes I was using steroids for about 3 years whilst using the immunosuppressants, which is why I believe it could be adding to the overall problem for me. My poor body is just knackered. I did however use Ciclosporin again when I went into withdrawal and it did work but the infections were just too much. It was a case of do I want better skin or better overall health. My overall health won. Hope whatever you try next gives you some respite.xxAnonymoushttps://www.blogger.com/profile/06028427818355761409noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-13471379435472672072014-03-07T17:23:49.813+00:002014-03-07T17:23:49.813+00:00Hi Jenny, I have just read your immuno-suppressant...Hi Jenny, I have just read your immuno-suppressants post. Were you using steroid creams too while you were using them? Lots of people do. I have been on ciclo for about 15 months and I'm beginning to think its not working any more. i am due to try micophenalate (or some such). I have not used steroids since beginning the ciclo...<br />thanks. Hope you;re doing well. xxElainehttps://www.blogger.com/profile/18228462458812222431noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-5791280653230909092014-02-14T12:05:50.130+00:002014-02-14T12:05:50.130+00:00Hi Jenny
I am just about to try ciclosporin. I ho...Hi Jenny<br />I am just about to try ciclosporin. I hope you find something that works<br />xoxo<br />KimAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-81460202180209295982013-04-24T16:33:14.508+01:002013-04-24T16:33:14.508+01:00Thanks for your comment, Jade! Do you frequent man...Thanks for your comment, Jade! Do you frequent many other eczema forums? I seem to remember someone on one called Jade and when reading her stories found them to be fairly similar to mine, as yours are.<br /><br />Sadly my hair is already really quite thin and fine, which I'm guessing is down to years and years of taking various medication as it used to be quite thick when I was younger so for me to even contemplate going back on MTX is something I really wouldn't want to do because of the vast rate that I was losing hair and how severe the loss looked in just a short period of time. <br /><br />I'm now back on Mycophenolate which I've been taking since around the middle of February. It didn't seem to be doing much so my dosage has recently been increased. I haven't had any respite from my skin since August last year so I'm becoming pretty desperate. The eczema herpeticum is going to be something I will continually suffer from unfortunately but I'm now on a long term dose of Aciclovir to try to keep it at bay.<br /><br />I will definitely research and ask about the Institute of Dermatology though I'm not sure how easy it would be for me to get to and from London on a frequent basis as it costs a fortune to get there from Lincoln. But thank you for giving me another avenue :)<br /><br />I don't use special sun cream, no, though I should because I'm finding that unless my skin is in a decent enough state then the sun cream dries it out horrendously and I then have to apply moisturiser which of course acts as a cooking agent so defeats the object. Not good.<br /><br />Definitely stay in touch though Jade as I'm interested in finding out more about how you get on :) xxAnonymoushttps://www.blogger.com/profile/06028427818355761409noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-79680783466183250392013-04-24T16:02:32.611+01:002013-04-24T16:02:32.611+01:00Hi Jenny, thanks for your site, its great! My stor...Hi Jenny, thanks for your site, its great! My story is very similar to yours, I've tried all the immunosupressants, have asthma and allergies as well and nothing works. I started at first on Ciclosporin which seemed to work for the first 6 months but then stopped working so I started taking azathioprine at the same time which didn't work at all. i was on them together for about a year and a half and my skin was DREADFUL!I also lived in a very damp moldy house with a horrible landlord who wouldn't let us move out. So I got bone marrow supression from the ciclo and aza so had to stop but kind of wanted to anyway as my doctor just left me on them for ages and they weren't helping at all. So after a couple of months a tried methotrexate orally at first for 4 months then I had a break because I got HSV1 in a patch of eczema on my scalp (I left it for ages because I didn't know what it was and thought it was juts normal eczema- so lucky I didn't get eczema herpeticum!) then I tried injecting MTX for 6 months in case I wasn't absorbing it properly which wasn't fun but its only once a week so its not too bad. My hair fell out too but it wasn't too noticeable and I've got pretty thick hair anyway. As soon as I stopped taking it it all came back so I would not stop taking MTX only for this reason if I were you. Anyway that didn't work so now I've just started taking Mycophenolate so fingers crossed! A week really isn't long enough for it to work at all so maybe you should try taking it again? I can see why the doctors might not want you too though because of the recurrent eczema herpeticum.You should ask to be referred to St Johns Institute of Dermatology at Guys and St Thomas' in London, its amazing, the doctors are so good there and they take everything so seriously and are really thorough. I live in Brighton and used to see a dermatologist here but she was rubbish compared to them! Its definitely work traveling to see them as well. They've got this Dermatology Day Centre where you go everyday for a week and it really sorts your skin out- it's very boring though, just putting emollients and steroids on every hour all day! Anyway that's enough of my rambling! random question, do you use special suncream from the doctor? I'm looking for some for people on immunospuressants with sensitive skin. Thanks! JadeAnonymoushttps://www.blogger.com/profile/12089983386901967834noreply@blogger.comtag:blogger.com,1999:blog-6463988665912494503.post-56191852724405460682013-02-05T18:14:54.373+00:002013-02-05T18:14:54.373+00:00Hi, thank you for your comment :) the capsules don...Hi, thank you for your comment :) the capsules don't taste of yeast, just smell like it. Not exactly the most appetising of smells when you first wake up on a morning! I've actually been prescribed thrush cream in the past to use on my eczema because I'm prone to sebhorreic as well as atopic, but it didn't work at all. I will have a look at your link though! xAnonymoushttps://www.blogger.com/profile/06028427818355761409noreply@blogger.com