Sunday, 16 June 2013

Hospitalised with Eczema Herpeticum and Periorbital Cellulitis

Hello lovelies!

You may or may not have seen on my Facebook or Twitter that I got out of hospital on late Friday afternoon so I thought it was about time I told you all on here of my adventures!

Saturday Morning

So you'll know by my other half's posts that I was in a really bad way and from my initial post about it last Saturday where it rapidly spread in a very short space of time. I was given a high dosage of Aciclovir tablets to take in the hope that it would clear up as it usually would but waking up on Sunday morning was just something I never hope to experience again. My right eye had swollen shut completely but the swelling was so incredible that I nearly had a break down when I saw myself in the mirror. The herpeticum had spread all over my face and I looked a right old mess. It was then that I knew I needed a higher level of medical help. I had only taken 4 Aciclovir tablets but the condition showed no means of halting or slowing down.

Sunday Morning

When getting to A&E once again, I was fast-tracked to the outpatient GP who couldn't quite believe what he saw. In fact his report was so, so detailed that he even included diagrams and drawings to refer back to in the future. He also asked if he may take a picture on his phone (!) which after having explained that it was entirely for medical teaching purposes and would not be published in any books or articles I agreed to. He even made up a contract for me to sign to say that it would solely only be used for teaching purposes.

But in all honesty, even if it does get published in a book or article I'm not really bothered. If it helps to show people the severity of a condition then so be it. People need to learn about these often unseen and infrequent, debilitating and sometimes life-threatening conditions as I found out when I eventually got onto a ward. No one really had much of a clue what had happened. They saw the word "eczema" in my notes and figured I'd have an allergic reaction.

Monday Evening

What I actually had however was a bit of a shock. Yes, it was a crazy bout of Eczema Herpeticum that had originated in my eyes, but I also had a secondary infection of Periorbital Cellulitis! I was absolutely terrified. Especially when it seemed to be taking ages to settle the swelling. You can see in Shane's photographs that there was a distinct difference each day that he came to see me, but when you're physically living and breathing the condition it literally feels no different so it became hard for me to gauge if I was getting better.

Tuesday Evening

I was administered Aciclovir and Antibiotics via IV treatment which was horrendous enough. During the 6 days of my stay 6 cannulas were put in different places on my arms. My body really just didn't like them. I know I end up having trouble with blood tests but this was just ridiculous. Each one is supposed to last up to a fortnight, with me it was literally 24 hours, if that. If my veins weren't blowing up due to treatment then the cannula was physically falling out of my arm, even with a bandage holding it in place! They also had trouble even getting it into a vein a lot of the time. I'm now covered in stab wounds and have horribly bruised veins that will take blooming ages to heal. I would make a rubbish junkie, that's for sure!

Wednesday Evening

I finally saw the dermatologist late Friday morning for a review of how I was healing and was told I could stop the IV treatment and swap to tablets which as you can assume I was more than happy to hear. My poor old veins needed a rest! She has given me an incredibly high dosage of Aciclovir to take for 1 month to stop it from reoccurring as this was the 7th time I have have now contracted it since April 2012. Mental. I'm also continuing the antibiotics as cellulitis can take months to properly heal.

When I was first admitted they told me to stop the Ciclosporin in case that was part of the reason that my body was taking so long to heal. I still haven't restarted it just yet as I'm not sure if that could even be part of the reason that this ordeal occurred. I wasn't stressed when it came on and I was really happy as my skin had finally taken a turn for the better so I have no idea where this all came from as I usually get herpeticum when I'm run down, which I certainly wasn't. The derm told me to resume taking it on Saturday but my skin isn't actually too bad, or certainly not greatly unmanageable so I think I'll give it a while longer before making the switch back.

Thursday Evening

I'd love to thank all of the nurses who looked after me whilst I was hospitalised. I was actually kept in the Medical Emergency Assessment Unit for the entire duration of my stay which isn't usual as you're only usually kept there for 24-48 hours. The nurses were really good and understanding of my needs, which from what I've heard isn't typical of Lincoln County Hospital. So I'm pleased I was in good hands!

Just as I was about to be discharged however, I came to a realisation that my eye sight wasn't up to par which frightened me somewhat. The vision in my right eye had deteriorated a little so they didn't want me to leave without having had an assessment just to ensure no damage had occurred. Thankfully she couldn't find anything and it was probably just down to the Aciclovir eye drops I'd had to administer. Luckily my eyes have now returned to normal and it's my left eye that is slightly worse, which it was before. Phew.

Friday Evening

I'm now under strict orders to rest and get better. I'm seeing the derm tomorrow for a review and blood test (noooo!) and hopefully they'll be pleased that I'm getting better.

Also hilariously when I was first getting my cannula put in Shane was holding my hand, the next minute he'd dropped his (thankfully unopened) can of Relentless on the floor and after I looked at him to see why he'd been so stupid I realised he looked as if he was about to faint. Sure enough Shane's roots upended and in slow motion he sank to the ground. Cue both our embarrassed faces... The nurses had a lot to talk about that day anyway. The silly sod!

Thursday, 13 June 2013

Another short update (including video from Jenny)

Hi Everyone,

I've got back from the hospital late again last night and am pleased to say that I saw another big improvement in Jenny's health.


She saw the dermatologist earlier in the day and was told that she is likely to be staying in until Friday, but will be visited each day by the dermatologist nurse or doctor for review.

There still remains the possibility that she will be held in over the weekend, in which case it will obviously be for the best, but hopefully I will be able to bring her home with me sooner rather than later.

Jenny is naturally becoming slightly frustrated at the prolonged stay, but appreciates it is for the best. Each nurse assuming that it is an allergic reaction isn't helping matters, but hopefully this event will help raise awareness of Eczema herpeticum across not just the nurses on that ward but others as well.


She has asked me to share a video which she recorded yesterday about her stay so far in hospital. Jenny also told me to mention that around 8 minutes in to the video when she mentions Eumovate she instead means Epiderm.





For those interested, I am posting daily updates on her recovery over at my Facebook page: https://www.facebook.com/runshanerun.

Thanks again for all your words of support and concern.

Shane

Sunday, 9 June 2013

A quick update from Shane

Hi Guys, Shane here (Jenny's Boyfriend). 

I just thought I would provide you with a quick update on Jenny's condition on her behalf.

This morning Jenny woke to find that her face had swollen to almost twice the size it was last night and that the herpeticum was continuing to spread rapidly.

 

We went back to A&E as soon as we could where she was later admitted to hospital where she is staying indefinitely until it all clears up. She is currently receiving antibiotics and aciclovir via a drip. As it is there weekend and there are no dermatologists in we have to wait until tomorrow for some answers on why it was so severe this time round and when she is likely to be discharged.

I made a write up on this weekend's events on my running blog which you can read for more info here: http://shanes1000km.blogspot.co.uk/2013/06/48002-49619km-when-fear-is-your-only.html. 

Feel free to skip past the stuff about the race at the beginning.


Jenny will no doubt provide you with her story once she has been discharged, but for those of you who may have been wondering how she was, I'm sure there are many, I thought I would provide you with a quick update.

Thanks for caring,

Shane