Showing posts with label curing eczema. Show all posts
Showing posts with label curing eczema. Show all posts

Thursday, 19 September 2013

An Update On My Topical Steroid Addiction

Some changes I've noticed recently:


  • My hair is growing back in. Since earlier this year when Methotrexate made me lose a lot of my hair and then deciding to withdraw from steroids  my hair has taken ages to grow back in properly. My eyebrows have also grown back in again, they're still relatively sparse but they're the thickest they've ever been, as in width-wise. Although I know that this will probably change again when I enter another flare.

  • Prior to TSW I would come out in horrible hives virtually every day, this doesn't seem to have happened in the months that I have been off steroids. How odd. I suppose that now that my body isn't craving the steroids as much as it was it has been able to level out and the acuteness of the flares don't really occur as often, if at all.

  • When I went to visit my Mum and the cats this weekend, I didn't even need to reach for my asthma inhaler! Now, whether this was a fluke or my allergies have diminished slightly, this is a huge achievement. When I would go to her house before, within the hour I was on my way to A&E with an acute asthma attack, needing a nebuliser and my skin would have blown up big style; blotchy, oozing and eyes swollen shut. I stopped using steroid inhalers before I went into withdrawal. I was always very naughty at taking my brown inhaler morning and night and would often lie to my nurse practitioner of my regularity in taking it. She moved me onto a stronger steroid inhaler earlier this year because of how often I would take my Salbutamol inhaler. I only ever used it once and that was in front of her. Now, I only use the Salbutamol one occassionally. Usually only on a night time before bed, but I think that is habit more than anything.

  • Since this whole full-body eczema malarky kicked off in January 2009 I found my only form of comfort was to slather myself in white soft paraffin. Having had MRSA recently and needing to allow the skin to dry out to stop the ooze, for the first time in that long while I have allowed my body to remain relatively dry. This is how I used to be prior to the eczema. I was able to have a shower and then not need to moisturise. I've been putting the thinnest layer of white soft paraffin on and even missing some areas on purpose that don't need it and eventually I'll stop using it altogether. They say dry and eczematous skin should be moisturised but I don't think this is necessarily true. I recently received an email from a blog reader telling me to come off the paraffin-based products altogether and I can see what he means. Applying any synthetic material to be absorbed by the body is a bad thing, especially when you think what else it is used for. It then makes you think after having withdrawn from steroid emollients, (initially used because the more grease the better right?) to speed up the process should you also withdraw from the paraffin based moisturisers? Food for thought anyway.

Hope everyone else is doing OK?

Saturday, 18 May 2013

Sore, Red, Dry, Itchy and Oozy

In my last post a lady linked me to her video that she had created about her experiences with this "Red Skin Syndrome" that is brought on from Topical Steroid Withdrawal. I was quick to show some of my immediate friends and family as she explains it all so, so well and her story is extremely similar to mine. I also like her comical way of putting the video together. It made it that much more "real" and there's definitely no pussy-footing about (no pun intended Miss Kitty Fantastico!) she gets straight to the point.

So please take the time to watch this, it really is interesting!


In news of how I am today, well I'm not good really. I only woke up at 11:30 which is hugely late for me but the truth is I've been avoiding getting up because it just feels all too raw and painful today. It's all because of last night's antics and frustrations. I came home from work expecting to be able to have a nice relaxing bath and the hot water stopped being hot when I'd only filled a small amount of the tub so sitting there on the bathroom floor in a state of itchy frenzy, with no one to support me I had a bit of a break down. It  took about an extra 40 minutes or so until I could run my bath. 

It will sound beyond trivial to some that I wasn't able to bathe as and when I wanted to but it isn't because I want to, it's because I need to for the sake of my poor skin. If I don't pander to the needs of my skin as soon as I can life just doesn't feel worth living.

Friday, 19 April 2013

RUNNING FOR A CURE - Charity



So this Sunday my other half will be running the London Marathon which makes up a tiny 4-5% of his overall 1000km Challenge. He is running to help raise money and awareness for the National Eczema Society in order to pave a way into finding the inevitable cure for this horrible, and often debilitating condition.

1000km is one hell of a challenge! Many people run one 10k or one marathon NOT 1000KM!!! That's the equivalent of 621.37 miles which is around the equivalent of going from Plymouth (South of England) to Inverness (Scottish Highlands)! That is one hell of a way really isn't it?! Not to mention it would take 209 hours which is basically over 8 days of running non-stop. MIND BLOWING?!

Every weekend, come rain or shine, and even snow, he is lacing up his trainers and running anything from a 10k (worth 1%) or a half marathon or full marathon. He is now over 1/4 of the way there with 285.94km under his belt. However despite his best efforts has only raised a measley 22% of his £6000 target. Imagine how much research can be carried out with £6000?

In order to sponsor Shane you can donate as much or little as you feel appropriate to http://www.justgiving.com/shanes1000km or alternatively you can text "RACE55 £x" (£1-£10) to 70070.

Please help to spread his mighty, epic challenge. Thank you :)

Much love to any of you who do sponsor, it really is a worthy cause!