Showing posts with label steroid induced. Show all posts
Showing posts with label steroid induced. Show all posts

Wednesday, 30 October 2013

Photo of Eczema Skin 5 Months Topical Steroid Withdrawal

I've had a few people ask how I'm doing lately so I figured I'd give a brief photo update.

Overall my skin is remaining white, it's just very dry and does go the palest shade of pink after rubbing on my face. I'm covered in tiny little wounds from scratching but they're so tiny and it's really just from the dryness that they've occurred. My skin is thick enough now that it doesn't cause weeping when I give it a good old scratch, just tiny nicks here and there that scab over and I naughtily pick them off.

 You can see the dryness is predominantly on my eye area and cheeks. My lips have been horribly dry too. You can also detect the skin flakes on my t-shirt. Yum! Oh and my eyebrows are becoming a little bit sparse again but I reckon that's because the skin isn't moisturised enough to hold in the hairs so when I have a scratch because they're so brittle they fall out easily.


Closer version

Closer side view

Mostly white tummy/hands except for some naughty scratching which has created the aforementioned small scabs. I haven't had matching hands for a while now so this is nice to see. My hands were also covered in hard skin last month which took ages to get rid of and although they're dry as a bone the skin feels relatively normal.

There still isn't much difference occurring in my legs. I just can't leave them alone :( I'm so bad. Telling the world about my picking habit obviously did nothing mentally for me. If it wasn't so cold right now I'd parade around in shorts so that everytime I caught myself in the mirror I'd feel ashamed.

But there you have it, a mini update from me! I think I attribute the dryness of my skin to the cold weather. It has been extremely windy and in fact we were down in Portsmouth this past weekend when the winds were a good 30mph. That obviously has done nothing to revive my poor skin.

Hope everyone is well :)

Tuesday, 1 October 2013

Painting Over The Walls To Hide The Cracks

Shane used a brilliant phrase in his post last month entitled "What If Everything You Thought You Knew Was A Lie?" describing how Doctors tend to paint over the cracks rather than fixing the problem to get to the root of the cause.



From my own personal experiences I come up against this all too often. Earlier this year when I decided to stop using topical steroid creams and immunosuppressants, I was met with a tonne of aberration from my dermatologist. Even now, after switching derms I still have a stand-off battle when I tell her I'm still not using the steroids, it's almost with spite and malice that she retorts; "Oh of course you're not." as she then rolls her eyes to the back of her head. What she seems to be failing to understand is that I'm not steroid-phobic. I genuinely feel that the treatments I have been given over this 4 and a half year period have done me more harm than good. I'm now worse than I ever was and I can only think to put it down to the prescribed medications after finding nothing other than cats and dust mites that I am severely allergic to (which only happened after my period of stress - I was never that allergic).

When I told my former dermatologist of my findings regarding Red Skin Syndrome and Topical Steroid Addiction he seemed happy enough to want to find out more at my next appointment, but I now realise he only agreed to read them to keep me sweet. The next appointment came and he didn't even bother to look at Dr Rapaport's papers. He told me they bore no credibility. Yet even when I argued that he should take a look at my own blog and read up on the blogs of fellow sufferers who had come out the other side cured he told me that he didn't like all this "technology business" and didn't use computers.

Erm what? You're a doctor living in the 21st century. It's basically your right to use a computer to find out what's going on in the current world!

That is when I decided to switch to seeing another derm, who again seemed to be on my side in the beginning, but as you can see from my previous entries, she turned out to be just as sour. What is their problem? Sure I can understand that it must be somewhat frustrating to be told these creams that you've been telling your patient to apply liberally are in fact the cause of the problem, but to outright dismiss the idea when all other treatments have been exhausted? I think it would at least be worth a try, no?

I realise that this isn't all the fault of doctors however, as Shane stated in his post, there are some scary convictions relating to dermatologists particularly regarding why they chose the specialism; not because they have an interest in the subject but because of the healthy pay packet and more time off. That kind of heralds part of the reasoning as to why they seem to stick so vigilantly to their treatments of topical steroids and immunosuppressants. If you're not bothered about your patients with recurring eczema that only gets worse why not just chuck something stronger at it instead of addressing the cause of the problem. It makes me angry.

Sure, there are some derms out there who do care about their patients and not just from a medical perspective, they do genuinely care for their well-beings (look at Rapaport, Fukuya, and all other red skinners who have been provided with love and care)... however I don't think I've found one for myself yet.

I'm not disputing the jobs of the doctors as it must be really frustrating to see your patient failing to respond effectively to treatment, but at the end of the day us patients do rely on them to give us some form of hope. Afterall, they are the one that have done the years of medical research and have the experience of treating other patients with similar conditions.

On top of all this there's the whole idea of the pharmaceutical companies making their mega bucks by distributing their medications which are initially approved by the FDA, but later are found to cause deaths and other life-threatening illnesses that weren't listed on the insert. This is then decidedly covered up as they would lose a lot of money and it creates more media hype and stigma against them. To the average Joe, that's you and I, we have no right to know what we put in/ on our bodies. As long as the big guns are raking in money then the world can go round.

Sources:


It truly makes you wonder if anyone has your best interests at heart in wanting to get better or is life just one big scam? Ooooh deep!

Also as an aside: don't you find it ironic that the inserts for many of these prescribed medications state that side effects can consist of skin rashes, itching, hives, allergic reaction, dry skin, edema and so on and so forth? Just a tad ironic that they won't give credit to steroid induced eczema yet the symptoms are often listed as side effects. How would you know if it was a side effect if you're already using these treatments to cure the said symptoms listed...?


Tuesday, 13 August 2013

Good News & Bad News

So this time last week I was in a state of real anguish and turmoil; riddled with herpeticum that just wasn't getting any better and thinking that my chances of making it to the festival were incredibly slim, given that getting dressed and leaving the house were a massive feat in themselves. Fast-forward to Thursday and I felt significantly better, or at least well enough to venture out of the house and endure the trek to Derbyshire to stay in a Travelodge for the weekend.

The next morning, after little sleep (being right next to a busy dual-carriageway is not cool), my body had visibly improved a heck of a lot and I was able to go to the festival site!!


Ignore my miserable expression, contrary to how I've been captured I was far from unhappy!

I took many, many precautions and ended up with bags and bags of luggage to prepare myself for the worst if it were to happen... which it really didn't!  I packed my "Comfywrap" leggings and polo-neck tops to sleep in to collect the ooze and stop me from ruining the hotels nice, white, crisp bed sheets and many tubegrips to wear under my leggings during the day. Clothing-wise, whilst not wanting to deviate from the sea of black too much, as it would make me stand out even more than necessary, my choice of attire for the weekend was very "skin flake friendly". I wore a lot of white and grey to stop it from showing up too much. I also wore a hat and large sunglasses to protect me from the sun. I was fully expecting to get sun burnt because I wasn't wearing sun cream as I didn't want it to irritate my already irritated skin, but thankfully I didn't. Funnily a lot of my friends didn't seem to recognise me at first as I usually dress in "metal" attire with at least some make-up on, but everyone appeared to be over-joyed that I'd been able to give two fingers to my illness and make it.

I can't thank Lisa enough for allowing me to stay in the Rock Society tent to keep cool and out of the sun. She really was doing everything possible to accommodate me and make my life that little bit easier at the festival, and for that I'm truly grateful.

And now despite having a brilliant time watching bands and reuniting with friends I only get to see at the festival and being able to withstand the long days I'm met with a bit of a spanner in the works...

My dermatologist and I assumed that I had eczema herpeticum because of how the "vesicles" appeared on my legs and the spreading nature of it. After 4 missed calls yesterday morning and a rather serious sounding voicemail message from my derm nurse, who is usually humourous regarding my condition, it's safe to say that I was very worried. She eventually got in touch with me and told me the bacterial swab they'd taken had come back positive for MRSA. 

That's right folks. I have MRSA. Another one to tick off the ever growing list of infections I've acquired.

I can only assume that I contracted this during my stay at hospital as I hadn't really left the house to be able to come into contact with anyone. Then again, a vast amount of the population live with MRSA on their skin and up their nose so who's to say? It just makes me wonder if when I was really bad the week after coming out of hospital where my skin seemingly "split open" that that is what it was, and not Topical Steroid Withdrawal.

I'm now taking Doxycycline, an antibiotic that the infection isn't resistant to so fingers crossed it goes away soon.

What baffles me most about this is that my skin started to improve at the end of last week, surely if the MRSA was raging and probably fueling itself off the penicillin based antibiotics I was taking, why did I have improvement? It also baffles me that when you look at images of MRSA they tend to be of nasty boils and doesn't tend to present itself as it has in me. Odd.

When all you want to do is cry, you just have to laugh instead.

Edit: and no one I came into contact with should be worried unless you have a seriously suppressed immune system like me, with open sores. Many people live with the virus on their skin and it does nothing, it's only when it colonises and gets in through wounds (hello eczema) that it can turn nasty.