Showing posts with label scratching. Show all posts
Showing posts with label scratching. Show all posts

Saturday, 5 April 2014

Still Plodding On

Hey guys, so it's been 2 weeks since my last update and there's just so much to tell you. Firstly, the reason I haven't put up any new photographs of my skin is because there hasn't really been much to show you in the way of change. I'm still dry, still getting red rashes from time to time so the pictures would just be similar to the others and I felt that pointless. I've also had a really hard time taking photos of my face. I just can't do "selfies" any more and if it's not that, then the camera keeps depicting redness that isn't there! Stupid thing. I also still have itch fits from time to time, though these are less and less severe and a very quick shower usually sorts me out.

The second thing I have to say is... *drum roll please*............. we're moving to Leeds! Yes, finally we're moving out of Lincoln and I am so damn proud that we can start to get our lives on track again. We've been stuck here for the last 5 years (6 for Shane) and it's just time to move on. I don't know if this is having an affect on my current red, dry skin because I can't say I'm not stressed. There's so much to do and finances won't be great this month but in a few months time we will be in a much better position. Yay! Also a few of my friends live in or around the area and my mum will be a mere hours journey away <3 I will however miss my Lincoln friends. Now that I'm finally on the mend I can be social but just as this is happening, I'm forging friendships only to leave them behind which sucks!

This past Wednesday I went to see my derm nurse and typically I didn't look my best but oh well! I was a little bit red and blotchy but that's probably the stress of trying to keep my skin nice to show her how well I've been doing. (FYI: I haven't seen her since October 2013!) She said the dermatologist had been given the go ahead to trial a new injection and I was one of the prime candidates. Well ha! I'm moving to Leeds so you can stick your injection (pun intended) I'm not going to be your guinea pig any longer! So that's the end of that. I have an open appointment if I need it, but otherwise I'm basically free.

My legs and back have retreated to their former white glory. The skin is lovely and smooth and doesn't require any moisture at all! Some areas get dry from time to time but I couldn't be happier. My tummy still gets the odd flare but it's nothing to complain about.

You can still see the scarring but when comparing it to how they were they're bloody fantastic! Here's a reminder of how they were.


I can't seem to stop scratching at my arms so they're a bit of a sorry state but I know they'll sort themselves out in their own time.

Similarly I can't seem to leave my neck alone at the moment. Last week it was fine but for some reason this week it's gone back to it's horrible dry self. Ho hum.

The brows are coming back once again but you can see a lot of creases and wrinkles from the dryness of my face.

This side appears to be my better side. Though the brows are still struggling.

And here I am. I'm a little bit red but I'm not too fussed. It doesn't look a bad red like it did initially. For people who didn't know how naturally pale I was they would probably think this was my normal tone... maybe.


Life does get better!

Hope everyone is well :)

Thursday, 20 June 2013

Getting Better After Being Hospitalised for Eczema Herpeticum

Thought I better check back in to tell you how I'm doing. Well I haven't rebounded thank goodness! I'm still taking the Antibiotics and Aciclovir and taking it easy. I went to see my derm nurse on Monday and she said I was doing fantastically well. I've also changed dermatologist as I'm just not gonna get anywhere with this steroid withdrawal business with the one I'm currently with. The lady I've swapped to is much more open minded so fingers crossed we get somewhere!

Tomorrow I go back to make sure I am still on the mend - which I know fine well I am so it's a bit of a pointless appointment. Though, we only made it just to be sure I don't need to extend my sick note for work. It'll be nice to get back to normal as I haven't even left the house this week apart from going to see various doctors.

My skin has been doing incredibly well considering I'm still off the Ciclosporin. I just assume that the antibiotics are helping to keep it at bay. The heat has been awful though and I have been really itchy too but thankfully I haven't completely destroyed myself through scratching, though I have been unable to control myself and am consequently covered in scratches and red patches. My face is rather unscathed though. 

I ended up having to take pictures on my phone as for some reason my camera, no matter how the settings were adjusted, made my face look super bright red, but it isn't. The colour is much more of a match with these pictured below.


 
Yayyy! The redness is subsiding...



That is until I put my hand next to my face and I can see that actually I still have a hell of a way to go before I can be considered my normal colour. Sigh. (But I do rejoice my white arm!)



I'll get there one day. We all will :)

xxx