My skin isn't improving at all. It's weeping constantly throughout the night making sleep somewhat of a difficulty to achieve and my antihistamines are not working one little bit.
I'm currently dithering as of whether to start up the Ciclosporin again as in the back of my mind I have a feeling it may be what contributed to my recent hospitalisation. On the other hand, I don't know how much longer I can deal with the itchiness. It's that kind of itchiness that I would describe as "searing" just like searing pain that is endured when you have small scratches and when showering is magnified as you experience the pain in each and every single scratch. The searing itch to me feels on a similar scale to this as you feel each and every single scratch tingle with an acute, unrelenting itchiness. It's terrible.
As for my skin itself, Shane pointed out to me last night that I'm not bright red all over my face any more, I'm back to being blotchy which I haven't experienced for a few months. I guess it's just a form of healing.
For me, it's really hard to gauge what is going on. I stopped using topical steroids in May even though I had been going through a tough time with recalcitrant full body "eczema". As soon as I started the Ciclosporin, by the end of the week my skin was becoming beautiful. I was really happy that the dryness was less apparent and I'd lost the redness. However the very next day obviously I ended up with my nasty infection of eczema herpeticum and a secondary infection of cellulitis, and since that time had taken antibiotics to treat the cellulitis. Skip two weeks later with the antibiotics finished and I'm back to being a mess.
Is it the lack of antibiotics? Is it the lack of Ciclosporin? Or is it just TSW?
It's just so hard for me to know what avenue to take with all this as obviously my body is at the end of it's tether. If I'm not reacting through my skin then I'm getting reoccurring infections. I say this often but I'm just becoming tired of the whole routine.
Anyway I leave you with some images. They're not brilliant in showing all the detail but they'll do.
A mostly white face with red blotchy patches
A close-up. There's a lot of raw openness which you can see in the red as well as yellow and orange areas where the skin has thinned.
Red open scratches on my neck that lead down to my chest, mostly due to the skin cracking open when weeping.
Tummy has started up again. Grr.