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Friday, 22 May 2015

2 Years Steroid Free

So the day has arrived. I am now 2 years free from using topical steroid creams.



I am however still suffering though. I'm just going to keep this post short and sweet as I have a lot to do today (see: cake), but I can say that even though I'm still having blips and flares (mostly due to infections!) it has still been the best decision I could have made. I was looking at some of my old photographs and even though I still get blotchy rashes from time to time they are no where near the same in their formation.

That isn't me any more. The rashes are completely different.


I'm also pleased to say I'm no longer suffering from some of the unwanted side effects of topical steroid withdrawal either. For instance I no longer suffer from this:

Elephant skin

Nor this:
Full body coverage

Or this! 
Red sleeve effect


My allergies have distinctly diminished, though still exist only in a lesser form of severity. Life has been slightly easier to endure, though it would still be nice to be given an end point to this suffering. It would also be nice to stop getting so many bloody infections too. That is my main nemesis at present - not withdrawal but infections, both viral and bacterial.

I hope everyone else is well, and I hope I have given others courage to partake in this wretched journey that we should never have to face to begin with.

Best wishes,



8 comments :

  1. Hey Jenny. Congrats on 2-years free! I know you've tried a ton of products and wondering if you've used SOOTHE by Rodan+Fields. I'm a distributor and would love to send you a FREE sample. Here are some before and after pictures https://www.pinterest.com/tjino/eczema-rosacea-psoriasis-redness-irritation/. Just PM at yourskincareconsultants @gmail.com. All the best! Jennifer

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  2. Hi Jenny, congratulations on your two-year anniversary. It may not feel like it at times, but you've come a very long way. Reading some of your posts from two years ago, bloody hell, you really have suffered. I really hope some kind of campaign starts eventually in regards to exposing the dangers of overusing steroid creams. This might sound very silly, but have you ever thought about writing to your local MP? It might be a way to get the awareness out there. You never know, they may even want to meet with you and hear about your suffering. You never know what might happen :)

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  3. Jenny!!! Congratulations on 2 years! I know what you are going through! I have suffered from eczema as well.

    I know you are probably tired of hearing about cures and solutions to this problem, but I just wanted to share what has helped me! I found a treatment that has almost eliminated my eczema! I don't have eczema as bad as some, but it was getting to the point where I never wanted to go anywhere with shorts or a short sleeve shirt on. I had it the worst on my arms and legs.

    So, I was doing research one day and found a soap company that claims to ease the symptoms (and maybe even cure) eczema. I was very skeptical, but I ordered 2 bars, one of the Oatmeal Honey Goat milk soaps, and one Pure'n Natural soaps (their website said these two soaps were the best for eczema) and started using it on my skin and found that the soap works! I also started using their "Milk Bath in a Bag" (shredded goat milk soap that you put in the bath tub) and I would soak in the bath once or twice a week. I am experiencing sweet relief and am LOVING IT! I am sold for this product! Check out the Johnson family's story and their website!

    http://www.bendsoap.com/mama-marilees-eczema-treatment/

    Thank you SO MUCH for raising awareness! You rock!! Have a blessed day!
    ~Sarah

    ReplyDelete
  4. OH! Here is a blog post in which Bend Soap Company (the company who makes these miracle bars of soap) tells of some of the testimonials they have gotten and why goat milk soap works. :) You should check it out!

    http://www.bendsoap.com/blog/how-to-solve-all-your-eczema-problems-for-5/

    ReplyDelete
  5. Hi Jenny thanks for the update. It's nice to hear that even though you're blotchy and by no means cured from this stupid thing that it isn't as bad. Let's hope the improvements continue!

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  6. Keep it up !! You will get well soon.Don't give up, we are all supporting you from different place!!

    ReplyDelete
  7. The very successful makers of GoodOnYa' manuka honey products have formulated a special all-natural eczema lotion that might help - http://amzn.to/1e8S3Ek

    Good luck with your journey - you are very beautiful!

    ReplyDelete
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